We are looking for patients to help us with developing a hip surgery journal.
A guided journal provides users with simple prompts to allow self-reflection and guide action. A hip surgery guided journal would allow the user to chronicle their thoughts, feelings, emotions, and experiences with their hip surgery experience, from diagnosis through recovery. It would also provide helpful lists and resources for people having hip surgery and would provide places to write questions, take notes, and record major milestones along their journey.
We are looking to see if this is something patients would be interested in and are interested in getting feedback about what patients would want included in a guided journal if one was created.
Chelsea from the UK shares her journey of diagnosis and undergoing Triple Pelvic Osteotomy (Birmingham Interlocking Pelvic Osteotomy) surgery and hardware removal on both hips. She also completed her Master’s Degree at a top UK university during this time! Read her story at: https://miles4hips.com/chelseas-story
It began with Nancy’s dream of running a 100 mile race after having both left and right PAO surgeries. In September, 2018, she completed The Bear 100, running from Logan, Utah to Fish Haven, Idaho in just under 33 hours. But even better, between the support of her incredible crew/pace team (all individuals whose lives have been affected by hip dysplasia) and the support of family, friends, and the hip dysplasia and PAO support communities, they were able to raise over $5000 for the IHDI!
With the support and encouragement of IHDI and some passionate and determined hip dysplasia advocates and friends, we decided to continue to develop the Miles4Hips initiative. Learn about our first event “The Bear 100” and read the blog posts at https://miles4hips.com/blog
On a recent Help for Hip Dysplasia Podcast Laura chatted with Sydney Steinberg, founder of PAO Buddies. From Sydney’s dysplasia experience, she quickly recognised the value of having someone to talk to that had a similar story, hobbies and at a similar stage of their journey. Sydney has been able to give others the opportunity to have this same support by matching people on PAO buddies. Visit www.paobuddies.org for more information.
We would like to welcome our new Miles4Hips board members! Mary Strehl is our new Volunteer Coordinator, Ariel Berwald as our Junior Board Member, Jonathon Ashkin as our Marketing Advisor and Melissa Arnold as our Social Relations Coordinator. Meet our board members by visiting us at https://miles4hips.com/miles4hips-executive-board.
We are always looking for volunteers, and if you would like to get involved email us at firstname.lastname@example.org.
Do you have questions about nutrition and its role in surgery recovery?
Check out our great new resource on nutrition written by Claire, who is a physiotherapist in the UK. She goes over nutrition basics, the effects of surgery on our body, and some recommendations to help prepare and recover from surgery.
Thank you to everyone who participated in The Day of Movement, and raised awareness for hip dysplasia. We raised just over $4000 for the International Hip Dysplasia Institute! Enjoy this video celebrating our Day of Movement!
The Miles4Hips 2nd Annual Day of Movement is October 10, 2020! Whether you’re a patient, a caregiver, a friend, a researcher, or a medical provider, we hope you will join us in building community, raising awareness, and supporting the efforts of the International Hip Dysplasia Institute.
Buy a team tee shirt and then wear it on 10/10/20 while you go for a hike, go for a run, push a stroller, roll in a wheelchair, get on a bike, have a dance party, do some gardening, or do some therapy exercises. Every movement counts!!!
Last year we had nearly 400 participants from around the world and raised over $7400 for the International Hip Dysplasia Institute. This year, can we do even more???
Items will be on sale now through September 15, 2020!