Miles4Hips believes that care and outcomes for hip dysplasia patients will be optimized when patients partner with medical providers and researchers.
If you are a hip dysplasia patient, please visit our site to have the opportunity to participate in hip-dysplasia related research projects from around the world. This is a great way to have a voice, share your experience, and help improve the lives of people living with hip dysplasia.
If you are a researcher, please feel free to share information about your projects with us. We would love to help you recruit participants so that you can contribute to the literature and knowledge base for this diagnosis and patient population.
There are no current studies. Keep checking back, and we will also help spread the word as studies come up!
Development, Validation and Use of a Patient-Centred Outcome Measure for Young Adults with Developmental Dysplasia of the Hip: the ‘Quality of Life, Concerns and Impact Measure’ (QoLC&I)
- Name of Researchers: Dr. Tina Gambling (School of Healthcare Sciences, Cardiff University), and Emeritus Professor Andrew Long (retired, School of Healthcare, University of Leeds).
Hip Dysplasia Registry study looking to understand patient and parent experiences with the DDH care process
- Name of Researchers: Dr Kishore Mulpari (BC Children’s Hospital, Vancouver)