Miles4Hips believes that care and outcomes for hip dysplasia patients will be optimized when patients partner with medical providers and researchers.
If you are a hip dysplasia patient, please visit our site to have the opportunity to participate in hip-dysplasia related research projects from around the world. This is a great way to have a voice, share your experience, and help improve the lives of people living with hip dysplasia.
If you are a researcher, please feel free to share information about your projects with us. We would love to help you recruit participants so that you can contribute to the literature and knowledge base for this diagnosis and patient population.
Participate in research: Share your experience with treatment braces for Developmental Dysplasia of the Hip (DDH)
Has your child used a harness, brace, or other treatment orthosis for Developmental Dysplasia of the Hip (DDH)?
If you are the parent or caregiver of a child who has used a harness, brace, or other treatment orthosis, please join a survey led by Dr. Kishore Mulpuri from the BC Children’s Hospital. The team is interested in improving their understanding of patient family experiences when using treatment orthoses, including harnesses, braces, and others. They want to hear your thoughts on ease of use, level of satisfaction, and overall quality of life during your child’s treatment.
The information collected through this survey will help us learn more about the greatest areas of concern when using these treatment orthoses, and how we can improve the overall experience for families in the future.
Please click the link below to complete the survey:
The survey will take approximately 15 minutes to complete. Answering this survey is voluntary and there are no penalties if you do not want to participate. All information gathered from the survey will contain no identifiable information and will not be linked back to you.
Thank you for your participation!
Development, Validation and Use of a Patient-Centred Outcome Measure for Young Adults with Developmental Dysplasia of the Hip: the ‘Quality of Life, Concerns and Impact Measure’ (QoLC&I)
- Name of Researchers: Dr. Tina Gambling (School of Healthcare Sciences, Cardiff University), and Emeritus Professor Andrew Long (retired, School of Healthcare, University of Leeds).
Hip Dysplasia Registry study looking to understand patient and parent experiences with the DDH care process
- Name of Researchers: Dr Kishore Mulpari (BC Children’s Hospital, Vancouver)